BMN-111 (BioMarin) | Growing Stronger
Growing Stronger
BMN-111 (BioMarin)

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  • Before Enrollment in Trial
    • BMN 111 Trial
      • What is the BMN 111 trial studying?
        No due date
      • When did the BMN 111 study begin and how long will it last?
        No due date
      • What might this medication do for our child's achondroplasia?
        No due date
      • How is BMN 111 different from any other medication?
        No due date
      • How old does our child need to be to enroll in the trial for BMN 111?
        No due date
      • Should our child enroll in the trial for BMN 111?
        No due date
      • How soon would you recommend that our child enroll in the study?
        No due date
      • What can we expect if we choose not to enroll our child in the BMN 111 study?
        No due date
      • How can our child enroll in the study?
        No due date
      • Do we need to pay for the costs of being in the study?
        No due date
      • How long will our child be enrolled in the study?
        No due date
      • If our child enrolls in the study, can we leave the study before it ends?
        No due date
      • Does our child need any tests done before enrolling in the study?
        No due date
      • How could BMN 111 affect our child's growth?
        No due date
      • If BMN 111 does not increase length, could our child still undergo limb-lengthening surgery?
        No due date
      • How soon could we start seeing the results of BMN 111 on our child's achondroplasia?
        No due date
      • Is it possible that this drug will decrease the occurrence of other complications frequently associated with achondroplasia (i.e. spinal cord compression, kyphosis, bowing of legs, etc)?
        No due date
      • Are there any side effects of this medication?
        No due date
      • Will we need to stop or change any of our child's current medications while in the study?
        No due date
      • Who is not eligible for enrollment in this study?
        No due date
    • Side Effects and Precautions
      • When should we notify the doctor regarding any side effects from the medication?
        No due date
      • What should our child avoid while taking this medication?
        No due date
  • During Trial
    • Lifestyle Changes
      • Are there any lifestyle changes (eg. exercise, diet) our child will need to make while on this medication?
        No due date
    • Taking the Medication
      • How much of this medication should we give our child?
        No due date
      • How should the dose be given to our child?
        No due date
      • When should we give our child a dose of BMN 111?
        No due date
      • How often will we need to come in to have our child examined while in the study?
        No due date
      • Will our child need any lab work done while on this medication? If so, how often will lab work be required?
        No due date
  • Call Your Doctor If
    • Call Your Doc If
      • Call the trial staff if your child experiences any symptoms, such as injection site reactions, headache, hypotension, dizziness, back pain and cough
        No due date
  • Starting Treatment
    • General Instructions
      • Our child has completed any lab tests needed prior to starting treatment.
        1 day at 9:00
      • We have talked to our child's healthcare team about how to give the correct dose.
        1 day at 9:00
      • We have enough medication so as not to miss a dose.
        2 days at 9:00
  • During Treatment
    • General Instructions
      • Give the daily dose [ie before breakfast, after dinner, before bed, etc] or as instructed by our child's doctor
        3 days at 9:00
      • Schedule required site visits with trial staff
        60 days at 9:00
      • Go for scheduled site visits with trial staff
        25 days at 9:00