LP Doc Talk: Dr. William R. Wilcox | Growing Stronger
Growing Stronger
LP Doc Talk: Dr. William R. Wilcox

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  • Dr. William R. Wilcox, M.D., Ph.D.
    • Questions & Answers on 10/30/2012
      • Any update [on the new BioMarin drug]? How long does a new drug (for rare conditions) typically take to go to market?
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      • I am having issues with my knees and my hips. I have a meniscus tear in my right knee and had it repaired surgically. I have severe arthritis in my right knee. I am really interested in finding out about knee replacement for LPS. Is it recommended? What is the success rate? I am having issues with my hips. I have extreme pain at times when I walk or stand for long periods. Any suggestions on how to relieve my pain?
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      • Dr. Wilcox,our third daughter, Hannah, is 16 months old and has the common mutation of hypochondroplasia. What are your thoughts about the potential of treatment of hypochondroplasia with BioMarin's drug in trial?
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      • Will removing tonsils and adenoids make a worthwhile difference in the obstructive sleep apnea?
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      • What causes bones not to grow after a fracture? Please help coz I have a fracture since July 2006 up to now, it hasn't healed.
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      • I need more information on acromesomelic dysplasia. I cannot find up to date information on the internet. My daughter is 7 1/2 years old 39 inches 45lbs.
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      • I have been reading about a new drug which makes bones grow for people with achondroplasia. Is this true? My four year old daughter has the condition. Will this drug help her or does it have to be used on babies. We are going to take the limb lengthening route, so the thought of her not to have to go through all the ops sounds too good to be true!
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      • I am an LP with 3M syndrome which is still being genetically confirmed. I am looking to find a family doctor who is familiar with dwarfism as all my present and past family doctors have not dealt with dwarfism other than myself and 3M is rare.
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      • I live in British Columbia, Canada and I am looking for a doctor and an orthopedic surgeon in BC that specializes in dwarfism and all?
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      • My son is 2 years and 2 months old with achondroplasia. We visit the doctor every 6 months. All of his test reports are normal including his head scan from the past two months. He gets up during the night 6-7 times and cry. I make him sleep again by putting him on my lap. I don't know the reason but he cries a lot at night. He started to walk at the age of 2 and can say just a few words but he is very sharp and active, he eats homemade food. I stopped giving him breastmilk when he reached 2 years old. I want to know why he is so uncomfortable and sleepless during the night.
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      • I have achondroplasia and so does my daughter who is 2 years old, how often do you think she should have sleep study test done? She had one at 6 months old and everything was fine. We moved and went to another sleep study doctor and he would like to have one done on her now to keep for his records but didn't see she had any sleep apnea problems but wanted to make sure. I am just nervous with her being 2 years old, how will she handle this and if you think she should have a sleep test done?
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      • Please help me. I am looking to find more information on SMD Kozlowski and wondering how can I find other people with this condition?
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      • My question is about my friend family's case. They have a 4-year old son with double genetic pathology -achondroplasia with mitochondrial myopathy. Have you ever encountered such cases in your medical experience? What would you advise to his family on supervision of such a baby? Could you recommend specialists to address in Europe? The family lives in Odessa, Ukraine.
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      • My daughter is five years old with Achodroplasia and a history of central and obstructive sleep apnea. She is due for another sleep study. It is important to have the sleep study done at a children's hospital or can any sleep lab perform an accurate sleep study?
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      • How do you assess growth hormone deficiency in achondroplasia and hypochondroplasia, respectively? And do you have/know examples of increasing height in achon- and hypo- due to GH?They state besides short limbs in achondroplasia there are three main visual signs such as dome-shaped head, flattened nose bridge and a trident hand. Is it possible that a child with achondroplasia miss one or some of them? And on the contrary, can a person with hypochondroplasia have signs such as large head with a prominent forehead?What would you advise to a person with achondroplasia who wants to give birth to a healthy offspring? Are there any new investigation in this field?
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      • Our 4.5 year old son has Chondrodysplasia Punctata X linked Recessive (CDXP1) ands already had a spinal decompression & fusion from C2 to C6 performed by Dr. Hamish Crawford at Star ship Children's Hospital in New Zealand 2011. Is there any risk that he could have the same problem elsewhere in the spine? In regards to insatiability of the vertebrata, will the surgery that he already had restrict his growth? He also has one leg (R) and one arm (L) shorter than they should be. Will they grow at a normal rate? He already wears orthic shoes and has problems with knee pain. What can be done to fix these issues?
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      • I need a recommendation for a doctor that treats SED conditions and also want to know can they live a full life.
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